Health Database Expert Meeting, Copenhagen

Start Date: September 15, 2015
End Date: September 16, 2015
Location: Copenhagen, Denmark

Agenda (final)

To download the presentations please click on the speakers’ names:

Day 1 Tuesday, 15 September 2015
10:00-12:00 Introduction to the meeting
Jon Snaedal, Chair of the workgroupWelcome
Andreas Rudköping, President of the Danish Medical Association

Address from the World Medical Association
Otmar Kloiber, Secretary General of the WMA

Centralized Health Databases, experience from Danish dialogue
Thomas Ploug, Professor of Ethics, Aalborg University, Denmark

Current draft of a WMA Declaration and main issues
Jon Snaedal, Chair of the workgroup

12:00-13:00 Lunch

Health databases, ethical issues 

Consent issues
Prof. Urban Wiesing, University of Tübingen

The role of Research Ethics Committees
Johannes Gaub, chair of the Danish National Research Ethics Committee

Panel discussions, first panel
Francis Crawley
Joerg Hasford
Rieke van der Graaf

14:30-15:00 Coffee break

Health databases, legal issues, and scientific use

EU regulation
Annabel Seebohm, Legal adviser to the WMA

The scientific use of health data
Sarion Bowers, research policy adviser, Welcome Trust Sanger Institute

Panel discussions, second panel
Brian Clark
Hans Storm

Day 2 Wednesday, 16 September 2015

Biobank issues and genomics

Experiences from Africa
Prof. Clement Adebamowo, University of Maryland

Specific issues with genomic information
Prof B. Knoppers, Global Alliance for Genomics and Health

Panel discussions, third panel
Leticia Cunetti
Kenji Matsui

12:00-13:00 Lunch
13:00-17:00 Closed Workgroup meeting