WMA To Support Icelandic Doctors On Fight Against Bill
The World Medical Association has agreed to support the Icelandic
Medical Association in its fight against an Icelandic Government
bill to establish a central health database for the entire population
of Iceland.
The General Assembly agreed to a request that the WMA secretary
general, Dr Delon Human, should assist the Icelandic Medical Association
in seeking to clarify with the Icelandic Government the incalculable
ethical consequences of the data collection Bill.
Dr Torben Pedersen, president of the Danish Medical Association,
told the WMA meeting that the proposed data on patient information
would be financed and organised by a private licensee, possibly
a pharmaceutical company, in return for which the licensee would
have a monopoly on the data for research purposes. The database
would contain all accessible information on patients from the
Icelandic health system over the past two or three decades.
He said the ethical risks of this proposal included other researchers
being denied access to the data, the possibility of carrying out
a complete DNA registration of the entire Icelandic population
and the risk of individual patient information being identifiable,
thus stigmatising families and isolated population groups.
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