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Adopted by the 43rd World Medical Assembly
Malta, November 1991and editorially revised at the 44th World
Medical Assembly Marbella, Spain, September 1992
and revised by the WMA General
Assembly, Pilanesberg, South Africa, October 2006
PREAMBLE
- Hunger strikes occur in various contexts but they mainly
give rise to dilemmas in settings where people are detained
(prisons, jails and immigration detention centres). They are
often a form of protest by people who lack other ways of making
their demands known. In refusing nutrition for a significant
period, they usually hope to obtain certain goals by inflicting
negative publicity on the authorities. Short-term or feigned
food refusals rarely raise ethical problems. Genuine and prolonged
fasting risks death or permanent damage for hunger strikers
and can create a conflict of values for physicians. Hunger strikers
usually do not wish to die but some may be prepared to do so
to achieve their aims. Physicians need to ascertain the individual's
true intention, especially in collective strikes or situations
where peer pressure may be a factor. An ethical dilemma arises
when hunger strikers who have apparently issued clear instructions
not to be resuscitated reach a stage of cognitive impairment.
The principle of beneficence urges physicians to resuscitate
them but respect for individual autonomy restrains physicians
from intervening when a valid and informed refusal has been
made. An added difficulty arises in custodial settings because
it is not always clear whether the hunger striker's advance
instructions were made voluntarily and with appropriate information
about the consequences. These guidelines and the background
paper address such difficult situations.
PRINCIPLES
- Duty to act ethically. All physicians are bound by medical
ethics in their professional contact with vulnerable people,
even when not providing therapy. Whatever their role, physicians
must try to prevent coercion or maltreatment of detainees and
must protest if it occurs.
- Respect for autonomy. Physicians should respect individuals'
autonomy. This can involve difficult assessments as hunger strikers'
true wishes may not be as clear as they appear. Any decisions
lack moral force if made involuntarily by use of threats, peer
pressure or coercion. Hunger strikers should not be forcibly
given treatment they refuse. Forced feeding contrary to an informed
and voluntary refusal is unjustifiable. Artificial feeding with
the hunger striker's explicit or implied consent is ethically
acceptable.
- 'Benefit' and 'harm'. Physicians must exercise their skills
and knowledge to benefit those they treat. This is the concept
of 'beneficence', which is complemented by that of 'non-maleficence'
or primum non nocere. These two concepts need to be in balance.
'Benefit' includes respecting individuals' wishes as well as
promoting their welfare. Avoiding 'harm' means not only minimising
damage to health but also not forcing treatment upon competent
people nor coercing them to stop fasting. Beneficence does not
necessarily involve prolonging life at all costs, irrespective
of other values.
- Balancing dual loyalties. Physicians attending hunger strikers
can experience a conflict between their loyalty to the employing
authority (such as prison management) and their loyalty to patients.
Physicians with dual loyalties are bound by the same ethical
principles as other physicians, that is to say that their primary
obligation is to the individual patient.
- Clinical independence. Physicians must remain objective in
their assessments and not allow third parties to influence their
medical judgement. They must not allow themselves to be pressured
to breach ethical principles, such as intervening medically
for non-clinical reasons.
- Confidentiality. The duty of confidentiality is important
in building trust but it is not absolute. It can be overridden
if non-disclosure seriously harms others. As with other patients,
hunger strikers' confidentiality should be respected unless
they agree to disclosure or unless information sharing is necessary
to prevent serious harm. If individuals agree, their relatives
and legal advisers should be kept informed of the situation.
- Gaining trust. Fostering trust between physicians and hunger
strikers is often the key to achieving a resolution that both
respects the rights of the hunger strikers and minimises harm
to them. Gaining trust can create opportunities to resolve difficult
situations. Trust is dependent upon physicians providing accurate
advice and being frank with hunger strikers about the limitations
of what they can and cannot do, including where they cannot
guarantee confidentiality.
GUIDELINES FOR THE MANAGEMENT OF HUNGER STRIKERS
- Physicians must assess individuals' mental capacity. This
involves verifying that an individual intending to fast does
not have a mental impairment that would seriously undermine
the person's ability to make health care decisions. Individuals
with seriously impaired mental capacity cannot be considered
to be hunger strikers. They need to be given treatment for their
mental health problems rather than allowed to fast in a manner
that risks their health.
- As early as possible, physicians should acquire a detailed
and accurate medical history of the person who is intending
to fast. The medical implications of any existing conditions
should be explained to the individual. Physicians should verify
that hunger strikers understand the potential health consequences
of fasting and forewarn them in plain language of the disadvantages.
Physicians should also explain how damage to health can be minimised
or delayed by, for example, increasing fluid intake. Since the
person's decisions regarding a hunger strike can be momentous,
ensuring full patient understanding of the medical consequences
of fasting is critical. Consistent with best practices for informed
consent in health care, the physician should ensure that the
patient understands the information conveyed by asking the patient
to repeat back what they understand.
- A thorough examination of the hunger striker should be made
at the start of the fast. Management of future symptoms, including
those unconnected to the fast, should be discussed with hunger
strikers. Also, the person's values and wishes regarding medical
treatment in the event of a prolonged fast should be noted.
- Sometimes hunger strikers accept an intravenous saline solution
transfusion or other forms of medical treatment. A refusal to
accept certain interventions must not prejudice any other aspect
of the medical care, such as treatment of infections or of pain.
- Physicians should talk to hunger strikers in privacy and
out of earshot of all other people, including other detainees.
Clear communication is essential and, where necessary, interpreters
unconnected to the detaining authorities should be available
and they too must respect confidentiality.
- Physicians need to satisfy themselves that food or treatment
refusal is the individual's voluntary choice. Hunger strikers
should be protected from coercion. Physicians can often help
to achieve this and should be aware that coercion may come from
the peer group, the authorities or others, such as family members.
Physicians or other health care personnel may not apply undue
pressure of any sort on the hunger striker to suspend the strike.
Treatment or care of the hunger striker must not be conditional
upon suspension of the hunger strike.
- If a physician is unable for reasons of conscience to abide
by a hunger striker's refusal of treatment or artificial feeding,
the physician should make this clear at the outset and refer
the hunger striker to another physician who is willing to abide
by the hunger striker's refusal.
- Continuing communication between physician and hunger strikers
is critical. Physicians should ascertain on a daily basis whether
individuals wish to continue a hunger strike and what they want
to be done when they are no longer able to communicate meaningfully.
These findings must be appropriately recorded.
- When a physician takes over the case, the hunger striker
may have already lost mental capacity so that there is no opportunity
to discuss the individual's wishes regarding medical intervention
to preserve life. Consideration needs to be given to any advance
instructions made by the hunger striker. Advance refusals of
treatment demand respect if they reflect the voluntary wish
of the individual when competent. In custodial settings, the
possibility of advance instructions having been made under pressure
needs to be considered. Where physicians have serious doubts
about the individual's intention, any instructions must be treated
with great caution. If well informed and voluntarily made, however,
advance instructions can only generally be overridden if they
become invalid because the situation in which the decision was
made has changed radically since the individual lost competence.
- If no discussion with the individual is possible and no advance
instructions exist, physicians have to act in what they judge
to be the person's best interests. This means considering the
hunger strikers' previously expressed wishes, their personal
and cultural values as well as their physical health. In the
absence of any evidence of hunger strikers' former wishes, physicians
should decide whether or not to provide feeding, without interference
from third parties.
- Physicians may consider it justifiable to go against advance
instructions refusing treatment because, for example, the refusal
is thought to have been made under duress. If, after resuscitation
and having regained their mental faculties, hunger strikers
continue to reiterate their intention to fast, that decision
should be respected. It is ethical to allow a determined hunger
striker to die in dignity rather than submit that person to
repeated interventions against his or her will.
- Artificial feeding can be ethically appropriate if competent
hunger strikers agree to it. It can also be acceptable if incompetent
individuals have left no unpressured advance instructions refusing
it.
- Forcible feeding is never ethically acceptable. Even if intended
to benefit, feeding accompanied by threats, coercion, force
or use of physical restraints is a form of inhuman and degrading
treatment. Equally unacceptable is the forced feeding of some
detainees in order to intimidate or coerce other hunger strikers
to stop fasting.
14.10.2006 |