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Adopted by the WMA General Assembly, Pilanesberg,
South Africa, October 2006
Introduction
- HIV/AIDS is a global pandemic that has created unprecedented
challenges for physicians and health infrastructures. In addition
to representing a staggering public health crisis, HIV/AIDS
is also fundamentally a human rights issue. Many factors drive
the spread of the disease, such as poverty, homelessness, illiteracy,
prostitution, human trafficking, stigma, discrimination and
gender-based inequality. Efforts to tackle the disease are constrained
by the lack of human and financial resources available in health
care systems. These social, economic, legal and human rights
factors affect not only the public health dimension of HIV/AIDS
but also individual physicians/health workers and patients,
their decisions and relationships.
Discrimination
- Unfair discrimination against HIV/AIDS patients by physicians
must be eliminated completely from the practice of medicine.
- All persons infected or affected by HIV/AIDS are entitled
to adequate prevention, support, treatment and care with
compassion and respect for human dignity.
- A physician may not ethically refuse to treat a patient
whose condition is within his or her current realm of competence,
solely because the patient is seropositive.
- National Medical Associations should work with governments,
patient groups and relevant national and international organizations
to ensure that national health policies clearly and explicitly
prohibit discrimination against people infected with or
affected by HIV/AIDS.
Appropriate / Competent Medical Care
- Patients with HIV/AIDS must be provided with competent and
appropriate medical care at all stages of the disease.
- A physician who is not able to provide the care and services
required by patients with HIV/AIDS should make an appropriate
referral to those physicians or facilities that are equipped
to provide such services. Unless or until the referral can be
accomplished, the physician must care for the patient to the
best of his or her ability.
- Physicians and other appropriate bodies should ensure that
patients have accurate information regarding means of transmission
of HIV/AIDS and strategies to protect themselves against infection.
Proactive measures should be taken to ensure that all members
of the population, and at-risk groups in particular, are educated
to this effect.
- With reference to those patients who are found to be seropositive,
physicians must be able to effectively counsel them regarding:
(a) responsible behaviour to prevent the spread of the disease;
(b) strategies for their own health protection; and (c) the
necessity of alerting sexual and needle-sharing contacts, past
and present, as well as other relevant contacts (such as medical
and dental personnel) regarding their possible infection.
- Physicians must recognize that many people still believe
HIV/AIDS to be an automatic and immediate death sentence and
therefore will not seek testing. Physicians must ensure that
patients have accurate information regarding the treatment options
available to them. Patients should understand the potential
of antiretroviral treatment (ART) to improve not only their
medical condition but also the quality of their lives. Effective
ART can greatly extend the period of time that patients are
able to lead healthy productive lives, functioning socially
and in the workplace and maintaining their independence. HIV/AIDS
is increasingly looked upon as a manageable chronic condition.
- While strongly advocating ART as the best course of action
for HIV/AIDS patients, physicians must also ensure that their
patients are fully and accurately informed about all aspects
of ART, including potential toxicity and side effects. Physicians
must also counsel patients honestly about the possibility of
failure of first line ART, and the subsequent options should
failure occur. The importance of adhering to the regimens and
thereby reducing the risk of failure should be emphasized.
- Physicians should be aware that misinformation regarding
the negative aspects of ART has created resistance toward treatment
by patients in some areas. Where misinformation is being spread
about ART, physicians and medical associations must make it
an immediate priority to publicly challenge the source of the
misinformation and to work with the HIV/AIDS community to counteract
the negative effects of the misinformation.
- Physicians should encourage the involvement of support networks
to assist patients in adhering to ART regimens. With the patient's
consent, counselling and training should be available to family
members to assist them in providing family based care. Physicians
must recognize families and other support networks as crucial
partners in adherence strategies and, in many places, the only
means to adequately expand the care system so that patients
receive the required attention.
- Physicians must be aware of the discriminatory attitudes
toward HIV/AIDS that are prevalent in society and local culture.
Because physicians are the first, and sometimes the only, people
who are informed of their patients' HIV status, physicians should
be able to counsel them about their basic social and legal rights
and responsibilities or should refer them to counsellors who
specialize in the rights of persons living with HIV/AIDS.
Testing
- Mandatory testing for HIV must be required of: donated blood
and blood fractions collected for donation or to be used in
the manufacture of blood products; organs and other tissues
intended for transplantation; and semen or ova collected for
assisted reproduction procedures.
- Mandatory HIV testing of an individual against his or her
will is a violation of medical ethics and human rights. Exceptions
to this rule may be made only in the most extreme cases and
should be subject to review by an ethics panel or to judicial
review.
- Physicians must clearly explain the purpose of an HIV test,
the reasons it is recommended and the implications of a positive
test result. Before a test is administered, the physician should
have an action plan in place in case of a positive test result.
Informed consent must be obtained from the patient prior to
testing.
- While certain groups are labelled "high risk",
anyone who has had unprotected sex should be considered at some
risk. Physicians must become increasingly proactive about recommending
testing to patients, based on a mutual understanding of the
level of risk and the potential to benefit from testing. Pregnant
women should routinely be offered testing.
- Counselling and voluntary anonymous testing for HIV should
be available to all persons who request it, along with adequate
post-testing support mechanisms.
Protection from HIV in the Health Care Environment
- Physicians and all health care workers have the right to
a safe work environment. Especially in developing countries,
the problem of occupational exposure to HIV has contributed
to high attrition rates of the health labour force. In some
cases, employees become infected with HIV, and in other cases
fear of infection causes health care workers to leave their
jobs voluntarily. Fear of infection among health workers can
also lead to refusal to treat HIV/AIDS patients. Likewise, patients
have the right to be protected to the greatest degree possible
from transmission of HIV from health professionals and in health
care institutions.
- Proper infection control procedures and universal precautions
consistent with the most current national or international
standards, as appropriate, should be implemented in all
health care facilities. This includes procedures for the
use of preventive ART for health professionals who have
been exposed to HIV.
- If the appropriate safeguards for protecting physicians
or patients against infection are not in place, physicians
and National Medical Associations should take action to
correct the situation.
- Physicians who are infected with HIV should not engage
in any activity that creates a risk of transmission of the
disease to others. In the context of possible exposure to
HIV, the activity in which the physician wishes to engage
will be the determining factor. Whether or not an activity
is acceptable should be determined by a panel or committee
of health care workers with specific expertise in infectious
diseases.
- In the provision of medical care, if a risk of transmission
of an infectious disease from a physician to a patient exists,
disclosure of that risk to patients is not enough; patients
are entitled to expect that their physicians will not increase
their exposure to the risk of contracting an infectious
disease.
- If no risk exists, disclosure of the physician's medical
condition to his or her patients will serve no rational
purpose.
Protecting Patient Privacy and Issues Related to Notification
- Fear of stigma and discrimination is a driving force behind
the spread of HIV/AIDS. The social and economic repercussions
of being identified as infected can be devastating and can include
violence, rejection by family and community members, loss of
housing and loss of employment, to name only a few. Normalizing
the presence of HIV/AIDS in society through public education
is the only way to reduce discriminatory attitudes and practices.
Until that can be universally achieved, or a cure is developed,
potentially infected individuals will refuse testing to avoid
these consequences. The result of individuals not knowing their
HIV status is not only disastrous on a personal level in terms
of not receiving treatment, but may also lead to high rates
of avoidable transmission of the disease. Fear of unauthorized
disclosure of information also provides a disincentive to participate
in HIV/AIDS research and generally thwarts the efficacy of prevention
programs. Lack of confidence in protection of personal medical
information regarding HIV status is a threat to public health
globally and a core factor in the continued spread of HIV/AIDS.
At the same time, in certain circumstances, the right to privacy
must be balanced with the right of partners (sexual and injection
drug) of persons with HIV/AIDS to be informed of their potential
infection. Failure to inform partners not only violates their
rights but also leads to the same health problems of avoidable
transmission and delay in treatment.
- All standard ethical principles and duties related to confidentiality
and protection of patients' health information, as articulated
in the WMA Declaration of Lisbon on the Rights of the Patient,
apply equally in the context of HIV/AIDS. In addition, National
Medical Associations and physicians should take note of the
special circumstances and obligations (outlined below) associated
with the treatment of HIV/AIDS patients.
- National Medical Associations and physicians must, as a
matter of priority, ensure that HIV/AIDS public education,
prevention and counselling programs contain explicit information
related to protection of patient information as a matter not
only of medical ethics but of their human right to privacy.
- Special safeguards are required when HIV/AIDS care involves
a physically dispersed care team that includes home-based
service providers, family members, counsellors, case workers
or others who require medical information to provide comprehensive
care and assist in adherence to treatment regimens. In addition
to implementing protection mechanisms regarding transfer of
information, ethics training regarding patient privacy should
be given to all team members.
- Physicians must make all efforts to convince HIV/AIDS patients
to take action to notify all partners (sexual and/or injection
drug) about their exposure and potential infection. Physicians
must be competent to counsel patients about the options for
notifying partners.
These options should include:
- notification of the partner(s) by the patient. In this
case, the patient should receive counselling regarding
the information that must be provided to the partner and
strategies for delivering it with sensitivity and in a
manner that is easily understood. A timetable for notification
should be established and the physician should follow-up
with the patient to ensure that notification has occurred.
- notification of the partner(s) by a third party. In
this case, the third party must make every effort to protect
the identity of the patient.
- When all strategies to convince the patient to take such
action have been exhausted, and if the physician knows the
identity of the patient's partner(s), the physician is compelled,
either by law or by moral obligation, to take action to notify
the partner(s) of their potential infection. Depending on
the system in place, the physician will either notify directly
the person at risk or report the information to a designated
authority responsible for notification. In cases where a physician
must disclose the information regarding exposure, the physician
must:
- inform the patient of his or her intentions,
- to the extent possible, ensure that the identity of
the patient is protected,
- take the appropriate measures to protect the safety
of the patient, especially in the case of a female patient
vulnerable to domestic violence.
- Regardless of whether it is the patient, the physician
or a third party who undertakes notification, the person learning
of his or her potential infection should be offered support
and assistance in order to access testing and treatment.
- National Medical Associations should develop guidelines
to assist physicians in decision-making related to notification.
These guidelines should help physicians understand the legal
requirements and consequences of notification decisions as
well as the medical, psychological, social and ethical considerations.
- National Medical Associations should work with governments
to ensure that physicians who carry out their ethical obligation
to notify individuals at risk, and who take precautions to
protect the identity of their patient, are afforded adequate
legal protection.
Medical Education
- National Medical Associations should assist in ensuring that
there is training and education of physicians in the most current
prevention strategies and medical treatments available for all
stages of HIV/AIDS, including prevention and support.
- National Medical Associations should insist upon, and assist
with when possible, the education of physicians in the relevant
psychological, legal, cultural and social dimensions of HIV/AIDS.
- National Medical Associations should fully support the efforts
of physicians wishing to concentrate their expertise in HIV/AIDS
care, even where HIV/AIDS is not recognized as an official specialty
or sub-specialty within the medical education system.
- The WMA encourages its National Medical Associations to promote
the inclusion of designated, comprehensive courses on HIV/AIDS
in undergraduate and postgraduate medical education programs,
as well as continuing medical education.
14.10.2006 |